Well, it's been quite the couple of weeks, with a very successful trip to the Boston Foundation for Sight for Ian. For the first time in 9 years his eyes are deemed to be stable, so we will take that with gratitude. While we were there we participated in the first Annual SJS Kids Week and it was a wonderful opportunity to meet other children and parents so that no-one felt so "alone". Some very therapeutic discussions and lots of fun too. The Staff at the Boston Foundation for Sight did an awesome job, but the real credit goes to Dr. Johns whose original idea was the basis for the whole event. Please visit the Boston Foundation for Sight for more information about the event and for some fun photos. Thank you to the Stevens Johnson Syndrome Foundation for the wonderful T-Shirts but more importantly for the incredible work they are doing. August is SJS month so please spread the word - you could save a life!
