Update

Well it's been a long time since my last post. It's been a rollercoaster ride of wonderful ocular stability to complete and severe inflammation causing regrowth of symblepharon (eyelids adhering to eyes). Add to that, the annual issues with school support and quite frankly it's been enough to make me say: OK - You Won! and sink into a deep black hole. After 9 years it's exhausting and has sucked the life out of all of us.

Finally though it's time to regroup and get back in the ring. Ian's eyes are too important to give up now....There are too many others every week who are going through SJS/TEN and how can we, in good conscience, support them if we don't keep pushing through.

So on that note, it's time to start getting organized for next year. We need to take Ian and at least 10 other kids to Boston, so we are working on our strategy. Corporate sponsorship is one option that we are looking at, so if you are a in a position of giving, please support us to help these children maintain their vision. For information about Stevens Johnson Syndrome please visit www.sjsupport.org or www.milnesjs.com you can also find information on Wikipedia at http://en.wikipedia.org/wiki/Toxic_epidermal_necrolysis