Thursday, December 15, 2011

Update!


It's been an eventful and positive few months since summer! Ian has successfully transitioned to his new middle school and is absolutely loving it. The Urticaric episodes seem to be under control and we are looking forward to Christmas.


We are moving forward with our research into systemic treatments addressing the devastating sequelae to Stevens Johnson Syndrome, but we are totally excited that we now have a definitive plan regarding the new ocular surface device and are looking forward to presenting it to the medical community in 2012. For the moment though, we are planning Ian's next trip to the Boston Foundation for Sight in March 2012 and our fundraising has begun in earnest.

In the meantime please support the International Stevens Johnson Syndrome Foundation as they need your signature on their petition to establish a mandatory reporting system for all adverse reactions to medication.